Family Receives Home From Charity To Help Child With Cerebral Palsy
People who live with cerebal palsy often need to have their homes remodeled to accompany the challenges of the disease. These upgrades can cost tens of thousands of dollars. But sometimes a family gets lucky, like this one from Chattanooga. News Channel 9 reports on the gift of a construction company to a family in need.
Pratt Homes has been working with Habitat for Humanity to help build a home for a family in need. A child in the Borngne family was born with cerebral palsy and needed a new place to live. With the help of the charity, Pratt Homes is building a home that will help with the child’s needs.
Among the improvements include wider doorways to allow wheelchair access through the home and a roll-in shower to aid with bathing. A spokesperson for the construction company says that the project was an excellent way to give back to the community.
When parents come with us with their tales of cerebral palsy after a traumatic birth and wish to sue their doctors, we bring up the costs of home upgrades. Making a home accessible to wheelchairs involve more than just building a ramp up the stairs. The costs can run into the tens of thousands of dollars.
We hope that the family will enjoy the new home and will receive easier care thanks to the accessibility features.
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Family Shares Story Of Cerebral Palsy Caused By Rare Condition
Part of the process of getting a favorable judgment in a birth injury case is proving that an injury was the fault of a medical professional. However, injuries like cerebral palsy have many causes and not all of them are due to a doctor’s error. Here’s an example from Yahoo.
It started when Robbie had trouble bottle-feeding. She seemed unable to do so. At four months, an assessment showed that she was developmentally delayed in every category. Doctors mentioned not to search for her symptoms.
When the family did, they discovered that it might be cerebral palsy. They remembered a time during labor when the baby’s hearth beat seemed distressed. They told a nurse, who took the news calmly. There was talk of a shortened umbilical cord during labor, which can cause oxygen problems.
Still, the family hoped the baby would make undergo a development surge, but by 18 months she was officially labeled as globally developmentally delayed. Seizures started happening soon after. A brain scan showed that it might be preiventricular leukomalacia, which can cause CP. The mother thought that she did something wrong during pregnancy to cause this.
However, this was not the case. A neurologist said that the damage may be genetic and to undergo testing for a mutation in the AP4B1 gene. Damage to this gene causes an extremely rare form of spastic paraplegia. Only nine people in the world were known to have it.
The family has since founded a non-profit to help others with this mutation and related mutations.
Generous Worker With Cerebral Palsy Receives Award For Donations
It’s the holiday season and we wanted to share a story of generosity that was reported by KARE 11 news. A man with cerebral palsy in Minnesota has been honored by a charity for his generosity.
Josh Beadell works at Walmart as a greeter and as a self-check out host. Last winter, he signed up to be part of the local Christmas for Kids charity as a Santa’s Little Helper. The charity brings toys to children. A friend of his mother was seeking help and he volunteered.
Last year, he purchased $1000 worth of toys for the program. They were amazed at the amount. But this year, he saved up $2000 and donated it to the organization.
To show their appreciation, the organization made a trophy for Josh and presented it to him at work. He deeply appreciated the award. Video of the surprise can be found at the link above. The video went viral and that’s how the media picked up on the story.
People with disabilities can be among the most generous out there because their condition gives them great compassion for others who are suffering. There are lots of ways that you can donate this year to help others. Consider giving a charitable donation yourself this holiday season.
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Girl With Cerebral Palsy Takes First Unassisted Steps
A 6-year-old girl in Austin, Texas with cerebral palsy has taken her first steps without a wheelchair or walker. WKRN has the story.
Love Johnson was diagnosed with cerebral palsy at the age of four. Doctors had told her parents that she would never be able to walk or talk. But a video shared by the family caught Love’s first unassisted steps. It has since gone viral and has been picked up by the news media.
Prior to this, she was using a wheelchair, braces, or a walker to get around. The parents of Love hope that the video will inspire other children with cerebral palsy to overcome their difficulties. They have been receiving a lot of requests for advice from other parents on how to help raise their children with CP better.
According to the article, it’s far better if CP is diagnosed early in a child’s development. The way to do this is to watch for movement milestones through infancy. If a child is unable to move their limbs correctly, roll over, or crawl in a strange manner, these can be signs of CP. A doctor can confirm the diagnosis.
There are many different forms of cerebral palsy depending on which regions of the brain are affected.
Grandmother Charged With Starving Grandson With Cerebral Palsy To Death
Caring for a child with cerebral palsy can be difficult, and sometimes it drives people to extreme acts if they cannot get the help and compensation they need for their care. A tragic case in North Carolina reported by NBC News shows an example.
A grandmother was arrested after police were called to her house and a child was discovered dead. The 8-year-old child had cerebral palsy and required a feeding tube to live.
An autopsy determined that the boy had starved to death and contracted acute bronchopneumonia from the lack of nutrition. He was only 25 pounds.
The grandmother was charged with involuntary manslaughter. Initial reports say the grandchild was not receiving proper care. Seven other children were living in the house and have been taken in by the Cumberland County Department of Social Services.
The child’s mother lives in Florida and said that her son also had epilepsy. The grandmother has been released on a $250,000 unsecured bond. She had custody of the children since April 2017, but none of the children were registered at a school.
We will never know all the circumstances that lead up to this tragic conclusion, but we hope that the mother of the child receives justice and that the children can get the care they need to lead a healthy life and deal with the circumstances.
Halloween Costume For Toddler With Cerebral Palsy Goes Viral
A picture of a toddler with cerebral palsy has gone viral and reported by national news media when his parents dressed him up for Halloween as a character from the movie “Up”.
CBS News has the images and the story. Brantley Morse, from Akron, Ohio, was dressed up as the character Carl from “Up”, the old man in the movie. In the movie, Carl use a walker to get around. Brantley also uses a walker of a different kind to manage his cerebral palsy.
The toddler was born four months-premature and had numerous health issues. He spent the first six months of his life in an NICU battling kidney disease, gastroparesis, and other serious conditions.
For Halloween, his parents found him a suit, bow-tie, and glasses like the character in the movie. After tying balloons to his walker, the image was complete.
We commend the parents for finding such a creative costume idea for their toddler. Many children with disabilities do not get to participate in Halloween activities due to their condition. But this story shows that if you have some creativity then you can still have fun for the holiday season.
We hope that Brantley has fun and that his condition continues to improve.
Home Nurse Caught On Camera Abusing Boy With Cerebral Palsy
Parents of children with a severe disability might hire someone to take care of their child while they to go work. Most nurses do their job with diligence and kindness. But sometimes things go wrong, like this case from Tennessee. WJLA reports.
A video taped by the mother shows the LPN she hired abused her son. She reported it to the police and the licensing board, and now the local media.
Dawn Caldwell told WJLA that the nurse was hired to care for her 20-year-old son. He has cerebral palsy. A few days after the hire, her son’s mood changed for the worse.
When she saw the nurse kick her son’s foot during a procedure, she and her husband bought cameras. The recorded video caught the nurse poking, slapping, and shaking her charge. Caldwell forced the nurse to leave, then reported her to authorities.
To her dismay, the licensing board allowed the nurse to renew her license and the court system moved the nurse to a pretrial diversion. This is where her charges would be dropped if she complies with the law for a period of time. That’s when Caldwell went to the media. She seeks justice for her son’s treatment.
We hope that Mrs. Caldwell can get the justice she and her son deserve. No nurse should keep their license if they’ve been caught abusing a patient.
Jason Benetti, Voice Of The White Sox, Shares His Cerebral Palsy Experiences
Jason Benetti is known as the announcer for the White Sox, but what you may not know is that he also has cerebral palsy. CBS Sunday Morning shared his story.
He doesn’t remember doing this, but as a child, he wanted to be the announcer for the White Sox and wrote about it in an essay. After a law degree and a few years announcing for other sports, he joined the White Sox in 2016. His co-announcer, Steve Stone, says that Jason overcame his disability through sheer force of will.
Jason was born premature and nearly died, but he recovered. However, he ended up with cerebral palsy. It took years of physical therapy and surgeries to get him to the point where he is today.
Yet even after attaining such a position, he still gets stares sometimes for the way that he moves. He says that his gait feels normal to him even though it looks odd and he has no trouble getting to where he wants to go.
He got his first taste of announcing after he tried to join the marching band to play the tuba. After quickly figuring out that wasn’t the safest thing to do, he was given a microphone to help the band rehearse.
He also shared some of his story with the Cerebral Palsy Foundation for their “Awkward Moments” videos. You can find the video in the CBS Morning link above.
Kernicterus Can Cause Cerebral Palsy
Cerebral palsy doesn’t have a single cause. It can be triggered by a number of different conditions that damage the brain. One of these conditions is kernicterus, a complication caused by untreated infant jaundice. Demotix.com explains.
Jaundice is a condition caused by problems with the liver. A chemical called bilrubin builds up in the blood that is processed by the liver in healthy people. When this chemical builds up it causes the yellowing of the skin that is the major symptom of this diseases.
Many children are born with jaundice but it is easily treatable and usually clears up within the first two weeks after birth. However, if it is not treated then the buildup of bilrubin can cause brain damage. This is called kernicterus. Both acute and chronic forms exist. Due to the fact that a baby’s brain is still forming, it is highly sensitive to damage. One of the possible side effects of kernicterus is cerebral palsy. While kernicterus can be cured with treatment, there is no current cure for cerebral palsy.
It is vital that your doctors handle any infant jaundice as soon as possible to prevent one of the causes for cerebral palsy. A common therapy is to keep the infant under special lights that break down the bilrubin until the baby’s liver gets used to being outside of the womb.
Man With Cerebral Palsy Completes 6.6K Race With Hand Bike
Cerebral palsy can make it difficult or impossible to walk, but that doesn’t mean that people with the condition are stuck. There are plenty of accessibility devices to help people with motor problems. One type, a hand bike, is even used for sporting. One man in Ohio finished a 6.6 kilometer race with one. WTOV9 tells the tale.
Justin Heckathorn was born with cerebral palsy but that hasn’t stopped him from being an athlete. For thirty years he’s been playing sports like football, shot put, and sled hockey, a form of hockey created for disabled people.
Last Sunday, he traveled to Pittsburgh to participate in the Pittsburgh Penguins 6.6K Run/Walk. He didn’t run or walk the race. Instead, he used a device called a hand bike. It’s like a tricycle that’s operated with your hands. By turning two cranks, the bike moves forward.
This is the second time he’s completed the race. He hopes that there will be future hand-cycling events closer to home and is looking for an upgraded model.
For some people a disability is a burden, but for others it can be a source of challenge and purpose to overcome their limitations however they can. If you have a child born with a birth injury or trauma, encourage them with their dreams and help them find ways to cope with what has happened.
Man With Cerebral Palsy Refused Entry On Bus
In addition to the physical challenges faced by people with disabilities, there are also social challenges. Sadly, people with disabilities can face discrimination by people who don’t know better. A story from Ireland illustrates this.
David Browne is an adult with cerebral palsy. He tried to board a bus to go home after seeing family in Dublin. The driver saw his spasticity and thought he was drunk. He refused to let David onto the bus.
Passengers who were familiar with cerebral palsy intervened and told the driver to let him on. The driver did so but refused to apologize despite goading from the passengers. David was “mortified and embarrassed” at the treatment he received.
The bus company, Bus Eireann, apologized to the man via email, but he doesn’t think that’s enough. He wants to know if procedures will be put into place to prevent this in the future.
Parents who have children with birth injuries need to prepare them on how to handle situations like this. Despite the massive improvements in the treatment of disabled people in America, there is still a long way to go.
When your children are old enough, educate them about the ADA and the rights they have under that law. That way, if they face a situation like this, they will know what to do.
Mother Opens Bakery To Help Her Son With Cerebral Palsy Get A Job
A coincidence has lead a family in Illinois to open up a bakery and help their son with cerebral palsy find a job. Fox 5 DC reported on the success.
Margaret Cortes found herself unemployed in 2018 and worrying about how she was going to help care for her son with cerebral palsy, who was just about to graduate from high school. So she decided to take a gamble.
When she heard that the local bakery was going to close down after being in business for over 80 years, she decided to open her own and employ her son. She and her son now run the Special Kneads Bakery in Galva, Illinois.
Her son, Frankie, was born with the Dandy-Walker variant of cerebral palsy and is blind in one eye. This is a rare congenital form of cerebral palsy caused by a brain malformation. His mother wanted him to get more exposure to other people to help him socialize better, so he works at the front taking orders.
Frankie says that he loves working at the bakery and has a goal of becoming a college student after he gets some work experience. Margaret wants to use the bakery to provide educational and vocational opportunities to others in the area who have disabilities.